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Author: Laurie Ann Demmer, M.D.
Legal and Ethical Issues in Human Genetics Legal and Ethical Issues in Human Genetics
        Confidentiality Confidentiality
Malpractice Law Malpractice Law
Genetic Discrimination Genetic Discrimination
Genetic Discrimination Genetic Discrimination
Regulation of Human Genome Research Regulation of Human Genome Research
Gene Patents Gene Patents
Ethical Challenges in Genetic Testing Ethical Challenges in Genetic Testing
Views on Genetic Testing Views on Genetic Testing
Autonomy Autonomy
Beneficence / Nonmaleficence Beneficence / Nonmaleficence
Legal Responsibilities of Health Care Providers Legal Responsibilities of Health Care Providers
Case 3: Familial Adenomatous             Polyposis Case 3: Familial Adenomatous Polyposis
Familial Adenomatous Polyposis Familial Adenomatous Polyposis
Genetic testing for FAP Genetic testing for FAP
Case 3: Familial Adenomatous             Polyposis Case 3: Familial Adenomatous Polyposis
Ethical Principles of Concern: Ethical Principles of Concern:
Duty to Warn Third Parties Safer v. Pack (1996) Duty to Warn Third Parties Safer v. Pack (1996)
Duty to Warn Third PartiesSafer v. Pack (1996) Duty to Warn Third PartiesSafer v. Pack (1996)
Duty to warn third parties, cont. Duty to warn third parties, cont.
Duty to warn third parties, cont. Duty to warn third parties, cont.
Duty to warn third parties, cont. Duty to warn third parties, cont.
Ethical Issues to Consider: Ethical Issues to Consider:
Genetic Testing in Minors Genetic Testing in Minors
Genetic Testing in Minors Genetic Testing in Minors
Friedreich Ataxia Case 1 Friedreich Ataxia Case 1
Freidreich Ataxia Case Freidreich Ataxia Case
Issues to consider: Issues to consider:
Case: Hemophilia in the family? Case: Hemophilia in the family?
Case: Hemophilia in the family? Case: Hemophilia in the family?
Ethical Principles to Consider: Ethical Principles to Consider:
Case 1: CF Newborn Screening Case 1: CF Newborn Screening
Case 1: CF Newborn Screen Case 1: CF Newborn Screen
Case 1: CF Newborn Screening Case 1: CF Newborn Screening
Possible Explanations for Discrepancy: Possible Explanations for Discrepancy:
How to proceed… How to proceed…
Ethical Principles of Concern: Ethical Principles of Concern:
Case: Known but unknowing patients with Factor V LeidenDeficiency Case: Known but unknowing patients with Factor V LeidenDeficiency
Case: Known but unknowing patients with Factor V LeidenDeficiency Case: Known but unknowing patients with Factor V LeidenDeficiency
Ethical Principles to consider: Ethical Principles to consider:
Case 2: 14 year old female with lack of pubertal development Case 2: 14 year old female with lack of pubertal development
Past Medical History Past Medical History
Physical Exam Physical Exam
Physical Exam, cont. Physical Exam, cont.
Work-up: Work-up:
Follow-up Follow-up
Ethical Principles of Concern: Ethical Principles of Concern: